Francis ( 6/2/1999 ) | |
| From | France |
| Comments | Nouveau Guestbook à partir du 5/02/99 |
Perrin ( 12/2/1999 ) | |
| From | Olichamp |
| [email protected] | |
| Comments | Très bon site. |
Pierre Bergeron ( 16/2/1999 ) | |
| From | Québec Canada |
| [email protected] | |
| Occupation | Technicien avionique |
| Comments | Lachez pas, Bravo!!! |
BESSOLES CECILE ( 7/3/1999 ) | |
| From | AVEYRON/FRANCE |
| [email protected] | |
| Occupation | EDUCATION NATIONALE |
| Comments | TRES TRES TRES RASSURANT BEL ACCUEIL, CONVIVIALITE.. ENCOURAGEANT DANS LA LUTTE CONTRE L'ISOLEMENT et ENCOURAGEANT POUR LA RECHERCHE MEDICALE |
Edward Nelson (cheesesoup) ( 12/3/1999 ) | |
| From | Saint Paul, Minnesota USA |
| [email protected] | |
| Occupation | I am a Mechanical Engineer for a large corporation. |
| Comments | I have quite a bad case of cervical dystonia. As you all know it has been very difficult for me at times. The pain can be quite severe. I have found a lot of relief by receiving Botox injections. I know this condition is a world wide problem and my heart goes out to all of you that are suffering. I speak English so please pardon my French. My Best Wishes to all. Sincerely, Edward (cheesesoup) ps Hello to my special friend Cecile. |
Edward (cheesesoup) ( 12/3/1999 ) | |
| From | Saint Paul, Minnesota USA |
| [email protected] | |
| Occupation | Je suis un ing'enieur me'canicien pour une grade soci'ete' |
| Comments | J'ai tout à fait un mauvais cas de dystonia cervical. C'a été très difficile parfois. Je suis souvent en douleur grave. J'ai beaucoup de soulagement en recevant des injections de Botox. Je sais que c'est un état mondial et mon coeur sort à toute la vous qui souffrent. Mes meilleurs voeux à tout le vous. Sincèrement, Edward (cheesesoup) picoseconde bonjour à mon ami spécial Cecile' |
Franck ( 14/3/1999 ) | |
| From | St Genis (France) |
| [email protected] | |
| HomePage | ANDREA TAXIS |
| Occupation | Taxi Driver - Gérant de société |
| Comments | Très interessant et très utile. Un bon soutien moral pour les malades et leurs familles. Ca permet surtout d'en savoir un peu plus sur ces maladies dont on parle mais dont finalement on ne sait pas grand chose. Merci de nous éclairer et bonne continuation à vous. |
Danielle ( 16/3/1999 ) | |
| From | Brussels |
| Occupation | Secretary |
| Comments | Merci de votre action pour les gens atteints de ce sale truc |
baracoudette ( 27/3/1999 ) | |
| From | france |
| [email protected] | |
| Occupation | artisan |
| Comments | ce site devrait etre reconnu d'utilite public! bon courage a toutes et tous! |
Guy MONZAT ( 29/3/1999 ) | |
| From | Cantal -FRANCE |
| Occupation | Directeur Etablissement Sanitaire et Social |
| Comments | Très bien votre site, je sais le travail que cela demande.... Il a le mérite de faire connaître ces maladies auxquelles peu de personnes sont sensibilisées , car elles ne sont pas médiatisées comme d'autres. Et pourtant la recherche médicale se doit d'aller "tous azimuts". Il est dommage de devoir faire des "téléthons" pour trouver l'argent nécessaire.... Je voudrais également saluer une de vos adhérentes, qui m'a fait connaître cette maladie, qui l'a fait connaître à beaucoup d'autres et qui n'épargne pas son temps et son énergie, avec courage, pour vous aider. Félicitations Cécile. Continue et continuez à vous battre. |
Margie Teed ( 2/4/1999 ) | |
| From | Arlington, Virginia, USA |
| [email protected] | |
| Occupation | at home |
| Comments | would like any information about the Bertrand Procedure. |
Myrtille ( 4/4/1999 ) | |
| [email protected] | |
| Comments | Bravo ! et bon courage pour les malades et leurs familles, je connaissais un peu la dystonie pour en avoir entendu parler lors des téléthon. |
Pierre Bergeron ( 12/4/1999 ) | |
| From | Quebec Canada |
| [email protected] | |
| Occupation | Avionics |
| Comments | Bravo a l'organisme! |
BanthA ( 14/4/1999 ) | |
| [email protected] | |
| Comments | Site fort intéressant. Clair, précis, instructif... J'ai appris pas mal de choses ici sur ces maladies peu connues. Le soutien reste la principale base de ce type de combat. Restons-en conscients et profitons de notre bonne santé pour aider ceux qui souffrent... |
MONGILLON ( 14/4/1999 ) | |
| From | PARIS |
| [email protected] | |
| Occupation | French Sales Director |
| Comments | Bon courage. |
jean-marc giorgi ( 14/4/1999 ) | |
| From | La Souterraine - 23300 |
| [email protected] | |
| Occupation | fonctionnaire |
| Comments | j'ai appris des tas de choses sur une maladie dont j'ignorais tout, sur une association qui m'était inconnue. Je peux le dire ? chapeau, et mour le site, et pour ce que vous faites |
Kari ( 15/4/1999 ) | |
| [email protected] | |
| Occupation | Secrétaire |
| Comments | Bon courage car il en faut, pour ceux et celles qui mènent ce combat, et ceux et celles qui en souffrent. |
pepette ( 16/4/1999 ) | |
| [email protected] | |
| Occupation | informatique+sport |
| Comments | je felicite et soutien les personnes atteintent de cette maladie pour leur courage et leur combat de tout les jours. |
Annie Goutier ( 1/5/1999 ) | |
| From | Montréal |
| hélè[email protected] | |
| Occupation | adjointe administative |
| Comments | Bonjour, opêrée pour la deuxième fois le 15 avril 99, mon torticolis spasmodique est guérie à 90%. Le docteur Bouvier et le docteur Molina Négro sont mes deux idoles. Quelle chance de souffrir de cette maladie à Montréal, où les meilleurs spécialistes y officient. Merci encore au personnel de l'hôpital Notre-Dame. À ceux qui souffrent comme nous, il ne faut décourager de rien. Ceux qui voudraient des infos sur l'opération et la convalescence peuvent me E.Mailer à l'adresse de mes parents. |
marc Fantoni ( 4/5/1999 ) | |
| From | france Paris |
| [email protected] | |
| Occupation | informatitien |
| Comments | je suis dystonique depuis l'âge de 14 ans et un tremblement depuis l'age de 40 ans j'ai eu la cranpe de l'ecrivain que j'ai compensé en apprenant a ecrire de la main gauche ma dystonie c'est agravée depuis 5 ans depuis j'ai un traitement artane 10 mg et 10gouttes de rivotril et depuis j'ai repris la musculation il y a des jours bien et d'autre tres difficile mais je suis pres à aider d'autre personnes |
Cosmao Arsène ( 14/5/1999 ) | |
| From | France |
| [email protected] | |
| Occupation | Employé de Fabrication |
| Comments | Grâce au site d'AMADYS j'ai découvert les différents aspects de la maladie et je trouve votre parcours intéressant et je vous encourage dans cette voie. Vous êtes le porte-parole de tous les malades atteints de dystonie aussi je vous adresse toutes mes félicitations pour votre lutte. |
Cosmao Arsène ( 14/5/1999 ) | |
| From | France |
| [email protected] | |
| Occupation | Employé de Fabrication |
| Comments | Grâce au site d'AMADYS j'ai découvert les différents aspects de la maladie et je trouve votre parcours intéressant et je vous encourage dans cette voie. Vous êtes le porte-parole de tous les malades atteints de dystonie aussi je vous adresse toutes mes félicitations pour votre lutte. |
MARTHA McCARTHY 17/05/1999 ( 17/5/1999 ) | |
| From | MONT-LAURIER QUÉBEC CANADA |
| [email protected] | |
| Occupation | RETRAITÉE DE L'ENSEIGNEMENT |
| Comments | EXCELLENT SITE QUI M'A ÉTÉ D'UN GRAND SECOURS CAR, JE VAIS ÊTRE OPÉRÉE PAR LE DR.BOUVIER ET MOLINA EN MAI 1999.AVEC LE TÉMOIGNAGE DE ANNIE GOUTIER ÇA CONFIRME QUE JE N'AI PAS TORT DE PENSER À L'OPÉRATION POUR SOULAGER MES DOULEURS AU COU.BRAVO À CES DÉVOUÉS DOCTEURS..J'AI TRÈS HÂTE D'ÊTRE EN MEILLEURE FORME GRÂCE À EUX. |
HAUGUEL Jeanne ( 1/6/1999 ) | |
| From | FRANCE Normandie |
| [email protected] | |
| Occupation | DELEGUEE AMADYS |
| Comments | Grand merci à Francis qui a construit ce site qui est si important pour nous tous malades dystoniques. Il nous permet de comprendre notre maladie et d'espérer. Amitiés à tous , amis d'infortune. |
marie-jo Rigüela ( 22/7/1999 ) | |
| From | Geneva |
| [email protected] | |
| Comments | I think that your site is nice but is important to give the news of this disease |
Bernard ( 7/9/1999 ) | |
| From | ALSACE/FRANCE |
| [email protected] | |
| Occupation | Enseignant |
| Comments | Un grand BRAVO à Francis GEHIN pour ce site remarquable tant par la qualité des informations recensées que par les ouvertures qu'il propose. Je souffre de dysphonie spasmodique depuis 2 ans. Je souhaiterais entrer en contact avec d'autres enseignants ou professionnels de la voix atteints de la même forme de dystonie pour savoir de quelle façon ils gèrent ce handicap dans leur métier... |
Céline Beauchemin ( 8/9/1999 ) | |
| From | Montréal, Québec, Canada |
| [email protected] | |
| Comments | Heureuse de vous avoir découverts. Atteinte de dystonie depuis quinze ans, soit depuis l'âge de 32 ans. Communiquerai avec vous d'ici peu. Merci! |
Edwige Ponseel ( 16/10/1999 ) | |
| From | France - Ile de France |
| [email protected] | |
| Occupation | Resp. Achats |
| Comments | J'ai 28 ans et ai un torticolis spasmodique depuis 12 ans. Je vis assez bien avec : j'ai une vie bien remplie et agreable. Je suis ravie de connaitre Amadys et attend beaucoup de votre association. Je souhaite participer a "votre famille". Bon courage a tous, a bientot ! |
marie ( 8/11/1999 ) | |
| From | France |
| [email protected] | |
| Occupation | teacher |
| Comments | antiques ,sea , travels ,reading ,friends,cinema ,dystonia... |
Jean Pierre GADBOIS ( 18/11/1999 ) | |
| From | LAVAL - France |
| [email protected] | |
| HomePage | La Dystonie |
| Occupation | Coordonnateur S.P.S. |
| Comments | Bravo pour la nouvelle présentation du site. Un accès plus facile aux diverses rubriques. La page accueil gagnerait à être plus courte à charger. Un ami qui te veux du bien A bientôt sur l'iClub Jean Pierre |
Nathalie Marchand ( 20/11/1999 ) | |
| From | Vancouver -Canada |
| [email protected] | |
| Comments | Ma mere est atteinte de dystonie, je peux enfin lui donner de l'information. Merci |
Turid Hantveit ( 20/11/1999 ) | |
| From | Glaskaret 16,N-5106 Øvre ervik,Norway |
| Occupation | TEACHER |
| Comments | Walking in the moountains in Norway;which I cannot do any more since the dystonia in my back muscles and now also in my neck,has become very severe.At the moment I am not able to work,so I seldom go to my school to look for e-mails. |
BELFILS Gérard ( 30/11/1999 ) | |
| From | 06 Vence FRANCE |
| [email protected] | |
| Occupation | Gerant de société |
| Comments | Merci des renseignements qu'AMADYS m'a fait parvenir. Ces renseignements sont précieux pour ma soeur atteinte par la blépharospasme Merci encore |
Martha Isabel Rozo ( 1/12/1999 ) | |
| From | Bucaramanga-Colombie |
| [email protected] | |
| Occupation | Professeur de langues étrangères |
| Comments | Je vous remercie d'avoir fondé ce site car c'est une lumière sur ce dur chemin qui est notre maladie. J'essaie de comprendre ce qui est la dystonie et suis très heureuse d'avoir votre soutien. |
Jean-François GANANÇA a.k.a GANOO ( 16/12/1999 ) | |
| From | Angers-France |
| [email protected] | |
| HomePage | Site Officiel de GANANÇA's official home page |
| Occupation | Junior engineer in electronics/Tenchnicien supérieur en électrnique |
| Comments | Comme cela a été dit précédemnt, je trouve aussi que la page d'accueuil est très longue à charger. J'ai tout mon temps mais ça peut en décourager certains. P.S. : free.fr offre une très bonne bande passante pour le moment ! ;-)) |
FAUTIER ( 12/1/2000 ) | |
| From | HEDE ILLE ET VILAINE (35) FRANCE |
| [email protected] | |
| Occupation | Cadre France Telecom |
| Comments | En tapant hémispasme dans le portail Voila on arrive directement sue AMADYS. Bravo pour avoir pris la décision d'ouvrir un site. |
Jean-Guy ( 12/2/2000 ) | |
| From | Lachenaie , québec , Canada |
| [email protected] | |
| Occupation | retraité |
| Comments | Je félicite M.Gehin et remerci ceux qui donnent des information . J'ai une dystonie cervicale depuis 3 ans . Je suis tres chanceux , depuis 2 ans je n'ai presque pas de mal . |
Monique Evans ( 23/2/2000 ) | |
| From | London |
| [email protected] | |
| Occupation | retired teacher |
| Comments | Interested in alleviation of painful legs & moving toes. Is this in dystonia? Or do you mean what are my general interests? Thanks for any info. I have just received my Amadys bulletin no.26 of jan 2000 from which I found this website |
Monique Evans ( 23/2/2000 ) | |
| From | London |
| [email protected] | |
| Occupation | retired teacher |
| Comments | Interested in alleviation of painful legs & moving toes. Is this in dystonia? Or do you mean what are my general interests? Thanks for any info. I have just received my Amadys bulletin no.26 of jan 2000 from which I found this website |
Florence LE CUFF ( 5/3/2000 05:39 ) | |
| From | Le Faou (Finistère) |
| [email protected] | |
| Occupation | Secrétaire-comptable |
| Comments | J'ai 27 ans et je suis atteinte d'un torticolis spasmodique depuis un peu plus de 10 ans. Après toutes ces années là, ça fait du bien de pouvoir enfin se connecter, en quelques clics de souris et sans se déplacer de chez soi, sur un site qui donne des informations au sujet de la dystonie. Alors bon courage à toutes les personnes qui luttent contre cette maladie, et aussi bonne continuation au site d'amadys !!! |
Ludovic LABERDEEN ( 5/3/2000 06:23 ) | |
| From | Russian |
| Occupation | Harvest machines and cars reparator |
| Comments | I had look at iclub's site distonia at http://www.egroups.com/list/dystonies/ and i'am affraid by the toxin. Can you say me if this mode is the must ? Ludo, I can't write in french, excuse me. |
Jean-Claude ( 7/3/2000 03:42 ) | |
| From | Québec,Canada |
| [email protected] | |
| Comments | Bonjour de Québec! Très bon site! A bientot! |
orezzoli mc ( 10/3/2000 05:33 ) | |
| From | France |
| [email protected] | |
| Comments | Je regrette de ne plus voir le groupe de discussion en français dont s'occupait Marie et Gene, c'était très convivial, on pouvait rire, se plaindre et être sérieux, tout à la fois. J'espère que cette "dystonie"(désaccord) entre personnes dystoniques ne va pas détruire ce site. Tous mes voeux vont vers vous tous pour que vous arriviez à trouver un terrain d'entente dans la sérénité et la paix. A bientôt, M.CAT. |
Flo ( 18/3/2000 20:44 ) | |
| From | Finistère |
| Comments | Le site d'amadys est très bon mais cependant il manque un chat en direct. ça rendrait le site encore plus dynamique. |
Sandra ( 6/5/2000 09:52 ) | |
| From | Montana |
| Occupation | Counselor |
| Comments | Thanksfor having a web page with useful information. Just having been diagnosed with cervical dystonia and beginning treatment I am happy to see so much caring. Sandra |
shumygirl ( 7/5/2000 19:53 ) | |
| From | TOULOUSE |
| [email protected] | |
| Comments | TRES BIEN BON COURAGE A TOUS ATTEINTS DE CETTE MALADIE!!! |
Laurent BOUTIGNY ( 25/5/2000 03:17 ) | |
| From | Ste CECILE |
| [email protected] | |
| Occupation | Informatique, Internet... |
| Comments | Je suis moi aussi dystonique et je vous remercie vraiment de pouvoir enfin avoir accé à des informations sur ma "maladie". Merci encore et à très bientôt, certainement... Laurent. |
Patricia Herrewig ( 25/6/2000 10:23 ) | |
| From | Arizona |
| [email protected] | |
| Occupation | Social Worker |
| Comments | Ballet (really a challenge with Spasmodic Torticollis) Reading French language and culture |
Réjean ( 30/6/2000 10:42 ) | |
| From | Québec Canada |
| [email protected] | |
| Comments | Mon frère est atteint de dystonie cervicale spasmodique depuis environ un an , il a 32 ans, il vient tout juste d'avoir un premier traitement de botox . Très content d'avoir trouvé se site pour lui donné de l'info .MERCI |
James A. Ryan ( 31/7/2000 03:11 ) | |
| From | Co. Tipperary,Ireland |
| [email protected] | |
| Occupation | Accountant |
| Comments | All sports,Current Affairs |
BRU agnès ( 26/9/2000 00:52 ) | |
| From | France |
| [email protected] | |
| Occupation | secretary |
| Comments | guérisson d'un héspasme facial après 18 ans de "galère" demandze mon témoignange auprès de http://perso.wanadoo.fr/amadys/ Merci |
Colette Gévry ( 3/10/2000 09:11 ) | |
| From | Granby, Québec, Canada |
| [email protected] | |
| Occupation | secrétaire-comptable |
| Comments | J'ai bien apprécié vote site. |
breton jacky 11 10 2000 ( 11/10/2000 17:36 ) | |
| From | sotteville les rouen 76300 france |
| Occupation | ex chauffeur routier a l invalidite |
| Comments | mes amities a tous et bon courage |
stefanie ( 15/11/2000 06:28 ) | |
| From | LEVIGNAC/SAVE |
| [email protected] | |
| Comments | SITE TRES BONNE PRESENTATION MES ENCOURAGEMENTS AUX PERSONNES ATTEINTES DE DYSTONIE,que cette maladie soit enfin reconnue comme certaines qui ne le sont pas malheureusement |
Virginie Cardona ( 21/11/2000 20:05 ) | |
| From | Saumur |
| [email protected] | |
| Occupation | student |
| Comments | bonjour, bravo ! Y a rien à dire. Ce site est super L'information sur les dystonie est complète. En plus, j'adore les musiques. :o))))) bises Virginie |
usagi ( 18/12/2000 09:10 ) | |
| From | canada |
| [email protected] | |
| HomePage | sailor moon |
| Occupation | student |
| Comments | Wow" |
Modesto Casanova Martinez ( 8/3/2001 03:45 ) | |
| [email protected] | |
| Occupation | Presidente de ALDE |
| Comments | podeis encontrar información de la distonia en www.distonia.org Muy buen sitio de distonia. Asociación de Lucha contra la Distonia en ESpaña |
Gerard MORIN ( 9/3/2001 23:45 ) | |
| From | Aix les bains |
| Occupation | Sans profession |
| Comments | Il y a quelques mois, une bourse de 70 000 frs était offerte à tout laboratoire qui accepterait d'engager des recherches sur les dystonies. Puis-je savoir à qui a été versée cette somme. Gérard. |
Elsa Lucas ( 27/6/2001 18:55 ) | |
| From | france (Brest) |
| elsa.lucas@club_internet.fr | |
| Occupation | étudiante |
| Comments | dystonique depuis un an et demi, je n'ai encore jamais rencontré des personnes souffrant de cette maladie. J'espère que ce site va m'aider. Merci à tous ceux qui voudront m'envoyer des témoignages concernant surtout la crampe de l'écrivain. Merci et bon courage à vous tous! |
Lajeunesse ( 17/7/2001 23:58 ) | |
| From | Marie-Hélène |
| [email protected] | |
| Occupation | teacher |
| Comments | Je suis francophone mais comprend l`anglais. Je saurai bientôt si je suis dystonique et je suis paniquée. Merci pour ce site car je suis mieux renseignée. |
Alain bigras ( 13/8/2001 13:04 ) | |
| From | Bellefeuille.Québec |
| [email protected] | |
| Occupation | Mécanicien.Bateau etmoteur léger |
| Comments | Ayant été opéré par le docteur Molina Négro.Je suis peut-être en mesure d'aider quelqu'un pour avoir de l,information sur le torticolis spasmodique et les effet de l'opéraion sur mon cas a moi. |
Martine DUPONT ( 17/9/2001 20:05 ) | |
| From | Nanterre |
| [email protected] | |
| Occupation | Secrétaire |
| Comments | Un grand merci pour votre site. J'ai 37 ans et j'ai une dystonie au bras droit,depuis l'âge de 12 ans, qui m'a empêché de suivre une scolarité normale. Ma famille m'a humiliée tant qu'elle a pu. A ce jour, je suis mariée et maman d'un petit Pierre de 20 mois. Ce que je lui souhaite le plus, ainsi qu'à vous tous, c'est de "vous sentir bien dans votre peau". Merci encore. |
KORSEC ( 9/10/2001 06:19 ) | |
| From | France |
| [email protected] | |
| Occupation | Médecin |
| Comments | Très bien C'est ainsi que l'on fait évoluer les choses. |
Rodriguez cyril ( 12/3/2002 16:13 ) | |
| From | Toulouse (31) - France |
| [email protected] | |
| Comments | Très très bon site ! Bravo et bonne chance pour la recherche et bonne continuation ! |
mohamed mouhouchane ( 14/3/2002 21:06 ) | |
| From | morocco |
| [email protected] | |
| Occupation | informations mondiales |
| Comments | j'ai une petite fille agée de 3 ans et demi qui souffre d'un retard moteur moteur, le problème qu'elle n'a pas crier qunad elle est née durant 1 heures, mais elle est tres intelligeante elle ime bien jouer avec son grand frere qui est age de 8ans, priere de me donner aid et assistance. |
Chapeau Brigitte ( 17/3/2002 06:47 ) | |
| From | la ferte saint aubin |
| [email protected] | |
| Comments | dans l'attente de vous lire ( torticolis spasmodique) |
_ ( 20/9/2002 13:41 ) | |
| From | _ |
| Occupation | _ |
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| [email protected] | |
| HomePage | ChangingLINKS.com |
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| [email protected] | |
| HomePage | NewSolutionsCanada.com |
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